DDH Patient and Family Engagement

The Hippy Lab at BC Children’s Hospital wants to better understand how patients and their families have been impacted by hip dysplasia.

Our team's goal is to provide education and resources that can help patients and families during the DDH journey.

The project centers on patient/family focus groups, resource sharing groups, and soon, a DDH patient and family advisory committee!

“The opportunity for families and caregivers to learn about hip dysplasia... is absolutely invaluable.

I am so grateful to the team at the Hippy Lab for their dedication to understanding and improving the

patient experience of families going through treatment for hip dysplasia.”

- Parent Testimonial

FOCUS GROUPS

To better understand the lived experiences of those affected by DDH, the project team hosted 14 focus groups, engaging 30 patients and over 40 family members.

These conversations explored their journeys through diagnosis, treatment, and rehabilitation, offering valuable insight into the challenges and needs faced throughout the DDH care pathway.

With these perspectives in mind, our lab has formed a DDH advisory committee with patients and families that will assist in codeveloping research priorities and focus the direction of the lab’s research and educational efforts. 

If you would like to be involved, please contact us at hippyadvisory@cw.bc.ca to learn more.

Watch Our Latest DDH Info Night Webinar Here:

Learn more about Pavlik Harness treatment for DDH through the recording of our last Info Night with Orthopaedic Surgeon Dr. Hayley Spurr and Nurse Practitioner Alyssa Robinson

Learn more about DDH and our work with it by visiting our Global Hip Dysplasia Registry (GHDR)

THANK YOU TO OUR SUPPORTERS!

This work is generously supported by a Michael Smith Health Research BC Convening and Collaborating grant, in addition to support from the I'm a HIPpy Foundation.

Announcement

Contributors

The success of this project is driven by the dedication of individuals who bring diverse expertise and perspectives to the table.

Key contributors include Drs. Emily Schaeffer and Bryn Zomar, Master’s student Duneesha De Silva, Regina Wilken from I’m a HIPpy, and our Hippy Ambassadors!

Head - Hippy Lab
Pediatric Orthopaedic Surgeon, BC Children’s Hospital, Professor, Head of the Department of Orthopaedics, University of British Columbia, Principal Investigator for Global Hip Dysplasia Registry (GHDR) and SLIP Registry
Principal Investigator
Research Director
Collaborator and co-lead in the project
Research Associate
Collaborator and co-lead in the project
Graduate Student Trainee
Master’s student focusing on Knowledge Translation (KT) initiatives and patient & family engagement